Hi Gemma

Just catching up on your posts. I am so sorry you have been diagnosed with RA. It is a life changing condition and one that will take time getting used to. I was diagnosed in January 2008 and I am still learning about this awful disease.

What I have learnt over the last two years the fatigue is the worst symptom to deal with. You have to make sure you have lots of rest in between the tiring times. It can make you very resentful if you have previously led a very active life but it is the only way you are going to cope. I work full time and have also found it very difficult to cope with work. I do go to bed earlier and spend more time resting at the weekends.

The other important thing you must do is get some decent pain killers sorted out. I take 8 paracetemol a day and Codeine at night. I like you cannot take anything stronger during the day as it makes me dizzy and I lose concentration. Taking the full compliment of paracetemol a day does take the edge off and it keeps it in my system at a constant level. Speak to your GP and get a good regime going. I also take Naproxen which is an anti-inflammatory (make sure you also have a stomach protector like Omeprazole). I was started off on Methotrexate when I was first diagnosed and it took a good three months before I noticed any difference. I have since started and failed on two anti-tnf's which is the next level up. They are now moving me onto Methotrexate injections to try and up the dose and not cause me so many stomach problems. Each person is different and the Methotrexate may start working for you after a while. In the meantime, please go for a depo steroid injection. It will relieve the pain and inflammation in your joints. They do not cause you to put on weight and they can be a real life saver when you are struggling.

Having a hobby is good. I cross stitch but I do find it very difficult with the pains in my hands. I certainly can't do the length of cross stich I used to. I have moved over to card making and it is less strenuous on the joints. I do believe it is very important to have a hobby. I am firmly convinced it has helped in not getting depressed. I keep my mind occupied as much as possible either with my hobby or with watching mindless drivel on the television (of which there is a lot).

The most positive thing I have done recently is pay for a private consultation with a Rheumatology Consultant. It costs around £150.00. I was with him for over an hour and it gives you time to ask all the questions you do not have chance to on the NHS. You can still get treatment on the NHS but it was the best thing I ever did and one that I would highly recommend to anyone new to the disease. I know it is a lot of money but if you can afford it I would highly recommend it.

I have learnt so much being a member of this forum and have found lots of support and love so keep posting.

Take care and I hope you start to get some relief soon.

Jackie
xx